Lochie Wright Black Tie Ball

This event is a Black Tie Cocktail evening which will comprise of guest speakers, Auction items & Raffles to raise much needed funds for Lachlan Wright.

Lochie Wright was born with 2q23.1 microdeletion syndrome. This rare condition only affects approximately 100 children worldwide. It is caused by a tiny missing part of one of the body’s 46 chromosomes.

Lochie’s condition encompasses, autism, intellectual disability and an extreme form of uncontrolled epilepsy. This form of epilepsy has meant that Lochie has had to be rushed to hospital on many occasions with prolonged seizures lasting up to 5 hours. Lochie also suffers from frequent daily absence seizures, delayed speech and language issues, behavioral, intellectual and developmental delays, movement and balance issues, growth and nutrition issues, and sleep disturbances (he has no circadian rhythms).To try to combat his seizures Lochie has been prescribed a range of medications. Unfortunately these further impact Lochie’s sleep patterns, language, and motor skills.

Lochie and the family are constantly worried about his seizures and what could happen if a family member is not nearby. A few minutes could mean everything in these situations, but there is a solution! A trained seizure alert dog.

This Event is to help riase funds for the specially trained Labrodor.